Events Update Spring 2015

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Team Little Owl, which honors Allie Fisher, was the local beneficiary of an Alex’s Lemonade Stand hosted by Olathe North High School in Kansas. The students raised $900 and split it between ALS and Team Little Owl. Kyle and Kelly Fisher also report that their annual Allie’s Sale has had to move to a new location for 2015 since it has outgrown its original location in their neighborhood. Cindy and Lou Campbell welcomed Scott Connors and Sheng Li to the TLC Foundation’s Share the Love gala. Scott is a medical student taking a year off from his studies to complete a research fellowship in Dr. Greenfield’s lab, and Sheng Li, PhD, the CBTP’s first Ty Louis Campbell Fellow, is a specialist in bioinformatics and computational biology working to interpret data from the genomic sequencing of pediatric brain tumors. Save the Dates: 2015 May 1: Elizabeth’s Hope cocktail party (Bowery Hotel, NYC) May 16: Christian Koehler Lacrosse Tournament (Heckscher State Park, East Islip, NY) May 16: “Come Fly With Me” —McKenna Claire Foundation Party With a Purpose (Huntington Beach, CA) May 17: Cheering for Caitlin 5K (Oviedo, FL) August 8: Muddy Puddles MessFest (Camp Kiwi, Mahopac, NY) September 12: Bronxville Road Race (Bronxville, NY) September (date and location TBA): Our Cure 4 Life Gala September 19: TYathlon and 5K (Mahopac, NY) October 8–10: Allie’s Sale (Grace Covenant Presbyterian Church, Overland Park,...

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Events Update Summer 2014

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Elizabeth’s Hope celebrated spring with a fundraising cocktail party on April 25 at the stylish Bowery Hotel in New York. All 600 tickets sold out well in advance, and the event raised more than $40,000 for the Children’s Brain Tumor Project. Many thanks to Tessa Naso for organizing another winning event. Our CBTP families were busy in May for Brain Cancer Awareness Month. On May 4, the Joshua Bembo Project walked in the Race for Hope in Washington, D.C. On May 17, the Christian Koehler Foundation held its annual lacrosse tournament in East Islip, Long Island, donating this year’s proceeds to the CBTP. TEAM Sean held its annual BANDs Together Against Brain Tumors event on May 18. Also on May 18, Cheering for Caitlin put on a 5K Remembrance Walk in honor of what should have been Caitlin’s 7th birthday. The event was hosted in Caitlin’s home town of Oviedo, Florida, but walkers there were joined by “virtual” participants from all across the country. More than 1,000 people walked in this event nationally, raising more than $20,000 for the CBTP. Many thanks to Katie Chandler and her mom, Joni Campbell Chandler, for organizing this event. Katie even went on to bring her DIPG awareness campaign to the final round of the Miss Outstanding Teen Florida pageant. On June 7, Olivia’s Foundation hosted the Curing Kids’ Cancer Marathon in Brooklyn, where Olivia’s parents, Enza and Frank Boccuzzi, presented Dr. Souweidane with $50,000 to support his research. Our deepest thanks for this tremendous generosity. Christopher Collina’s parents marked the May 21 anniversary of his diagnosis by holding t-shirt sales at PS158 in Staten Island (where his mom Melissa works) and the Police Department in Plainfield, New Jersey, (where his dad Tommy works). The Collinas sold hundreds of shirts and donated the proceeds to the Children’s Brain Tumor...

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Bronxville Road Race 2014

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Register today for the inaugural running of the Bronxville Road Race for the Children’s Brain Tumor Project will take place on September 13, 2014. All proceeds benefit pediatric brain tumor research at Weill Cornell Brain and Spine Center. The CBTP focuses on the research and treatment of rare and inoperable brain tumors that affects children and young adults. The CBTP was founded, in part, with the generous support of Elizabeth Minter (Bronxville High School Class of 2009) and her family, longtime residents of Bronxville. Elizabeth was diagnosed with gliomatosis cerebri in 2010 and lost her battle with the disease in 2012. Courses: The 5-mile course will start and end near the playing fields of the Bronxville School. There will also be a 2.2 mile short course for runners, walkers, those walking dogs, and parents with baby strollers; there will also be a 1-mile “Kids Crush Cancer” Dash (parents may accompany small children for no additional charge). Cost: Early registration is $35 for the 5-mile run and the 2.2 mile short course. Kids can participate in the dash for $10 each (no additional charge for parents who run with their children). Race fees will increase closer to the event ** Participants are asked to raise a minimum of $250 each from sponsors to help us reach our GOAL of $100,000 for this event. You will be directed to a fundraising page after you complete your registration, or you may visit it at...

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Events Update Spring 2014

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Annie Longobardo and her mom, Lisa, dedicated their run in the Michelob Ultra New York 13.1 Marathon on March 22 to Elizabeth’s Hope and raised more than $2,000 for the Children’s Brain Tumor Project. Thanks, Annie and Lisa, for yet another great effort on our behalf! Katie Chandler was named Miss Winter Park’s Outstanding Teen in January, with the theme “Finding a Cure for DIPG” in honor of Caitlin Downing. Katie advances to the Miss Florida’s Outstanding Teen Pageant in June, when she will speak about the Children’s Brain Tumor Project. Katie will be accompanied by a “little princess,” played by Caitlin’s big sister, Courtney. Both pageants are part of the Miss America Scholarship pageants. The good folks of Oviedo, Florida, came together for a fundraising Rummage Sale in memory of Caitlin Downing… six-year-old twins Eve and Danya Herman of New York asked for donations to the Children’s Brain Tumor Project in lieu of birthday presents, in memory of their friend Fiona Lundell… friends and colleagues of Tom Jones, who dedicated his August 2013 Mt. Kilimanjaro climb to Elizabeth Minter, have continued to spread the word and show their support, with thousands of dollars in additional donations arriving this winter…Gretchen Scott, who has pledged all of her proceeds from the Elizabeth’s Hope shirt to supporting our research, sent in another generous donation from these sales…the McKenna Claire Foundation made a $50,000 gift, proceeds of their many fund-raising events, to support the Children’s Brain Tumor Project’s research on DIPG, the tumor that claimed their daughter’s life… Huge thank yous to everyone who supports the Children’s Brain Tumor...

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Events Update December 2013

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September brought events for Pediatric Cancer Month along with more campus events for Elizabeth’s Hope. We are grateful that so many of our Campus Ambassadors are helping pass the torch to the next generation of Elizabeth’s Hope supporters. A big thanks to Lilly Santoro for serving up the Second Annual Mixed Doubles Tennis Tournament for Elizabeth’s Hope at Gettysburg College in October. The tournament was initiated last year by Elizabeth’s friend Erin Hackett, who generously helped Lilly take the reins of what we hope will be an annual event. This event is especially meaningful to us, since tennis was Elizabeth’s sport. Thanks, Erin and Lilly, for carrying on this tradition in her name. Many thanks to Brenda Ries in New Jersey and her sister Angela Moore in Kansas for an extremely active September! Angela is COO of eScreen, which made the Children’s Brain Tumor Project the beneficiary of its company-wide fundraising campaign. Brenda and her son Sean have been tireless advocates for pediatric brain tumor research, and they led the GOLD OUT campaign at sporting events in September. At one game Sean released golden balloons, each of which bore a tag with the name of a child who lost the battle. Sean’s balloons honored Caitlin, Ty, Bizzie, Brooke, Juliana, and Elizabeth. We are so grateful for this family’s support! Thanks to our friend in Louisiana, Kathleen Clark of “What’s YOUR Fight?” for organizing the Second Annual Tailgate Saturday on October 12 at the LSU Parade Grounds in Baton Rouge. Last but not least, a very special thanks to our running friends, including Emily Kuschnar of Team Zachys, who ran in the October 13 Westchester Running Festival to support the Children’s Brain Tumor Project, and Caitlin Hudson, who ran the New York Marathon on Fred’s Team to benefit research at Memorial Sloan-Kettering Cancer Center. See previous...

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